PTOTRCTDevelopmental medicine and child neurology2025

Participation in activities of daily living after the Akwenda Intervention Program for children and young people with cerebral palsy in Uganda: A cluster-randomized trial.

Elizabeth Asige, Gillian Saloojee, Godfrey Wanjala and 5 others

PMID 39964674

WHAT IT FOUND

Children with cerebral palsy in rural Uganda who received the Akwenda program increased their attendance in daily activities more than waiting-list controls.

Gains were largest for those with greater mobility limitations and in community activities like celebrations and employment.

Key findings

01The intervention group showed a greater increase in total attendance scores (median change 6.0) compared to the control group (median change 2.0), with a statistically significant difference.

02The intervention group showed a greater increase in total involvement scores (median change 5.0) compared to the control group (median change 2.0), with a statistically significant difference.

03Attendance increased across all activities, but the largest gains were seen in community activities such as celebrations, employment, and social activities.

STILL TO COME

How it was doneWhat they foundWhat it means for PTsWhat it means for OTs

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What it does not show

The study was conducted in a specific low-resource, rural context in Uganda, so results may not generalize to high-income settings or urban areas with different social structures. The intervention was complex and multi-component, making it impossible to determine which specific element (e.g., assistive devices, caregiver training, or advocacy) was responsible for the improvements. Blinding of assessors may have been compromised due to the geographical clustering of participants and the visible provision of assistive devices. The PMP measure has moderate test-retest reliability, which could affect the precision of the outcome measurements.

Declared interests

The study was funded by several Swedish foundations and research councils (Stiftelsen Frimurare Barnhuset i Stockholm, Vetenskapsrådet, Stiftelsen Sunnerdahls Handikappfond, Stiftelsen Promobilia). No conflicts of interest were declared by the authors.

The easy way to misread this

Do not attribute the improvement in participation to a single component like physical therapy or assistive devices alone. The intervention was a package including caregiver training, community advocacy, and device provision, and the study cannot separate the effect of any one part.

Summarised by AI from the full paper, without a clinician reviewing it. Check it against the source before it changes what you do. Read it on PubMed →