OTSLPOtherJournal of developmental and behavioral pediatrics : JDBP

Shared Decision-Making During Initial Diagnostic and Treatment Planning Visits for Children with Autism Spectrum Disorder.

Christina M Mulé, Tara A Lavelle, Samantha K Sliwinski and 1 others

PMID 33443970

WHAT IT FOUND

Observed shared decision-making was very low in first autism diagnosis visits: providers rarely discussed options or preferences, and 41% showed none, though parents and providers rated it much higher.

Key findings

01Observed shared decision-making was very low: the average total score across 22 visits was 1.1 of 20, and 41% of visits had no shared decision-making components.

02Parents and providers reported much higher shared decision-making than was observed, with parent item means of 2.7, 3.2, 2.8, 2.4, and 3.2 and provider item means of 2.7, 2.8, 3.2, 3.0, and 3.2.

03Treatment plans included applied behavioral analysis, speech-language therapy, and occupational therapy; parents described planning as collaborative (68%) or prescriptive (32%), and only 27% recalled the evidence base.

STILL TO COME

How it was doneWhat they foundWhat it means for OTsWhat it means for SLPs

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What it does not show

The findings come from one academic medical center and only six developmental behavioral pediatricians, so they may not apply to community clinics, private practice, or other specialties. The parent sample was small and included only English-speaking families, so results may not apply to families with different languages or backgrounds. Two parents had visits recorded but did not complete interviews, and those two visits were not scored, so the analysed sample may miss information about some families. Parent and provider shared decision-making ratings were collected after the visits, not immediately, and providers rated their average behaviour across the study, which may make recall less accurate. The study did not collect provider interviews about their own views, so it cannot explain why providers perceived more shared decision-making than observers recorded. This is an observational study of usual visits, so it cannot show what would improve shared decision-making.

Declared interests

The authors declared no conflict of interest. The article is listed as supported by NIH extramural funding.

The easy way to misread this

Do not conclude that decision aids improve shared decision-making. This study did not test any intervention; it only observed visits and asked parents and providers about them.

Read it on PubMed →