Feasibility and Acceptability of a Telephone-Based Intervention for Hispanic Children to Promote Treatment Adherence After Traumatic Brain Injury: A Pilot Study.
Nathalia Jimenez, Molly Fuentes, Alyssa Virtue and 7 others
PMID 33656480WHAT IT FOUND
A telephone-based navigation and education program was feasible and acceptable for Hispanic families after their child's traumatic brain injury.
Most parents reported high satisfaction, and 86% of children attended initial follow-up rehabilitation appointments on time.
Key findings
01The intervention was highly acceptable, with 82% of approached families enrolling and 90% of parents reporting the navigator knew important information and helped with scheduling.
02Treatment adherence was high, with 86% of children receiving all initial follow-up rehabilitation appointments within the required time.
03Parental caregiving self-efficacy significantly improved, with maximum gains reported three months after discharge.
STILL TO COME
How it was doneWhat they foundWhat it means for PTsWhat it means for OTsWhat it means for SLPs
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What it does not show
This was a very small pilot study with only 14 participants, so the results cannot determine if the intervention actually works better than usual care. There was no control group, so it is impossible to know if the improvements in adherence and self-efficacy were due to the intervention or natural recovery. Child functional outcomes were based solely on parent report, which may not accurately reflect the child's actual abilities. Recruitment was poor for families with short hospital stays, meaning the sample may not represent children with milder injuries who are discharged quickly. The educational booklet was not accessible to parents with low Spanish literacy, limiting the reach of the education component.
Declared interests
The authors report no conflicts of interest. The study was supported by the National Institute on Disability, Independent Living, and Rehabilitation Research (NIDILRR) and the National Institute on Deafness and Other Communication Disorders (NIDCD).
The easy way to misread this
Do not interpret the high adherence and satisfaction rates as proof that this specific program causes better clinical outcomes. This was a small pilot without a control group, so these results only show that the intervention is feasible to deliver and acceptable to families, not that it is effective compared to standard care.