Parents' experiences of having a child who had a stroke: A systematic review and meta-ethnography.
Radhika Bhatia, Shereena Yoon, Ellie Simpson and 2 others
PMID 41004604WHAT IT FOUND
Parents describe childhood stroke as a sudden, shocking event worsened by low awareness among professionals.
They report feeling abandoned after discharge, forcing them to self-educate. Support needs change over time, with fathers and siblings often overlooked.
Key findings
01Parents experienced the diagnosis as profoundly shocking, exacerbated by a general lack of awareness among healthcare professionals and educators that children can have strokes.
02After discharge, many parents felt abandoned by hospital services and underprepared for home care, leading them to self-educate through online research and advocacy.
03Fathers and siblings were largely absent from the research, and fathers specifically reported feeling sidelined and powerless during the acute care phase.
STILL TO COME
How it was doneWhat they foundWhat it means for PTsWhat it means for OTsWhat it means for SLPs
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What it does not show
The review included only seven studies, which limits the breadth of perspectives. Most studies focused on mothers; fathers' experiences were underrepresented, with only one study exclusively interviewing fathers. There was a lack of diversity in terms of ethnicity, socioeconomic status, and family structure. One included study was an unpublished thesis, which may not have undergone the same peer-review scrutiny. The quality appraisal noted that researcher reflexivity and analysis rigor were ambiguous in most studies. One study lacked clear reporting of ethical approval and anonymity, raising questions about its credibility.
Declared interests
One author, who was a member of the advisory group, was offered payment for their contributions, though the authors state this was not a motivating factor. The lead researcher had a personal history of childhood stroke, which informed the analysis.
The easy way to misread this
Do not assume these findings apply equally to all families. The review highlights that fathers, siblings, and families from diverse cultural or socioeconomic backgrounds were largely underrepresented in the included studies, so their specific experiences may not be reflected here.
Summarised by AI from the full paper, without a clinician reviewing it. Check it against the source before it changes what you do. Read it on PubMed →