Pandemic intake questionnaire to improve quality, effectiveness, and efficiency of outpatient neurologic and developmental care at the Kennedy Krieger institute during the COVID-19 pandemic.
Pooja Vedmurthy, Connor Murray, Belinda Chen and 28 others
PMID 36275920WHAT IT FOUND
Guardians of children with neurodevelopmental disorders reported worsened mood, behavior, sleep, and therapy-access problems during the pandemic.
A pre-visit questionnaire surfaced these concerns, and Five out of six program directors found it helpful.
Key findings
01Guardians reported worsened mood in 20% of responses, worsened behavior in 20%, worsened sleep in 11.7%, and increased difficulty accessing therapies in 20%.
02Guardians from more medically complicated clinics reported perceived increased risk (30% vs 9%), difficulty accessing therapies (32% vs 18%), and difficulty accessing surgeries (9% vs 3%) compared with less medically complicated clinics.
03Five out of six responding program directors found the questionnaire helpful, and 66.7% made more referrals than before the pandemic.
STILL TO COME
How it was doneWhat they foundWhat it means for PTsWhat it means for OTsWhat it means for SLPs
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What it does not show
This was a cross-sectional survey, not a trial, so it cannot show that the questionnaire changed care or patient outcomes. Only 33.6% of questionnaires were returned, and returning the questionnaire was voluntary, so families who did not answer may have been different. Families with infrequent email access and non-English speaking families may have been less likely to participate. Programs sent questionnaires at different numbers of days before appointments, which may have affected response. The questionnaire did not behave like a single unified measure; its items covered many different clinical areas. Only Six of 7 program directors responded to the provider feedback survey. The paper did not formally analyze differences between more and less medically complicated clinics.
The easy way to misread this
Do not conclude that the Pandemic Intake questionnaire improved care. The paper reports guardian survey responses and Five out of six program directors found it helpful, but it did not compare care with the questionnaire against care without it.