Feasibility and Acceptability of a Codesigned Health Care Transition Intervention for Young People With Spinal Cord Injuries.
Emily Alice Bray, Ajesh George, Bronwyn Everett and 2 others
PMID 38076288WHAT IT FOUND
Young people with spinal cord injury and clinicians found a new transition website easy to use and helpful for preparing for adult care.
They said it works best when a therapist introduces it in clinic, rather than expecting families to find it alone.
Key findings
01All participants reported a positive first experience with the website, and six out of ten found it easy to navigate.
02Clinicians viewed the website as a reference point or ice breaker for transition conversations in clinic, rather than a standalone resource families would seek out.
03Participants requested more information on peer support for parents, the National Disability Insurance Scheme, and processes within adult health care services.
STILL TO COME
How it was doneWhat they foundWhat it means for PTsWhat it means for OTsWhat it means for SLPs
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What it does not show
The sample was very small (ten participants) and not representative of the broader spinal cord injury community. There were no male-identifying young people or parents/caregivers included in this phase. The study did not include culturally and linguistically diverse representation, including Aboriginal and Torres Strait Islander participants. This was a feasibility study, so it cannot determine if the website actually improves transition outcomes or health care independence.
Declared interests
The authors declared no competing financial interests. The work was supported by the SpineCare Foundation, Sydney, Australia.
The easy way to misread this
Do not interpret the high acceptability ratings as evidence that the website improves health outcomes or transition success. This study only assessed whether the intervention was feasible and liked by users; it did not measure clinical efficacy.