Family-centred service in paediatric acquired brain injury rehabilitation: Bridging the gaps.
Taylor Jenkin, Vicki A Anderson, Kate D'Cruz and 2 others
PMID 36619530WHAT IT FOUND
Family-centred care is best practice in paediatric brain injury rehab, but implementation varies widely and lacks clear guidelines.
Clinicians must actively partner with families, tailoring goals and communication to the child's development and the family's unique context.
Key findings
01Family-centred service is considered best practice, but there is no consensus definition or evidence-based clinical practice guidelines to support its implementation in paediatric acquired brain injury rehabilitation.
02Families often report unrecognised or unmet information and emotional support needs, particularly regarding the impact of the injury and future treatment plans.
03Collaborative goal setting improves engagement and motivation, but formalised methods are inconsistently implemented and require clinicians to develop specific skills in negotiation and active listening.
STILL TO COME
How it was doneWhat they foundWhat it means for PTsWhat it means for OTsWhat it means for SLPs
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What it does not show
This is a narrative review, not a systematic review or meta-analysis, so the selection of studies may be subjective and it does not provide pooled effect sizes. There is no consensus definition of 'family-centred service', making it difficult to compare studies or implement a uniform standard of care. Most existing literature focuses on mothers and parents, with limited evidence on the specific needs and participation of fathers and siblings. The review notes that the effectiveness of family-centred interventions in pABI rehabilitation has not been thoroughly evaluated, so recommendations are based on principles and qualitative experiences rather than robust outcome data.
Declared interests
The provided text does not include a conflicts of interest or funding declaration.
The easy way to misread this
Do not interpret this review as evidence that specific family-centred interventions have been proven to improve clinical outcomes in pABI. The authors state that effectiveness data is limited and implementation is inconsistent, so this paper describes a philosophy of care and areas for future research rather than validated treatment protocols.