Understanding frames: A UK survey of parents and professionals regarding the use of standing frames for children with cerebral palsy.
J Goodwin, A Colver, A Basu and 10 others
PMID 28809057WHAT IT FOUND
Most UK clinicians prescribe standing frames for children with cerebral palsy from experience, not guidance.
Parents reported daily use was achieved by 18% and 30 to 60 minute use by 52%. Benefits were perceived, not proven; space, funding, discomfort and support needs limited use.
Key findings
01Standing frame prescribing was mainly based on clinical experience rather than guidance: 89% of prescribing clinicians and 81% of nonprescribing professionals reported this.
02Prescribed daily use was rarely achieved: 82% of prescribing clinicians recommended daily standing, but only 18% of parents reported it; 76% recommended 30 to 60 minutes, while 52% of parents reported that duration.
03Respondents reported perceived benefits, especially change of position (79.1% of parents and 80% of prescribing clinicians), and barriers including funding (87% of nonprescribing professionals), home space (78% of prescribing clinicians), needing a rest (25.3%), and pain (14.3% reported by respondents; 31.6% among parents of previous users).
STILL TO COME
How it was doneWhat they foundWhat it means for PTsWhat it means for OTs
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What it does not show
It was a convenience sample, and the authors could not calculate response rates, so it may not represent all UK clinicians or parents. Physiotherapists dominated the professional responses, while fewer orthopaedic surgeons and paediatricians responded than expected, so views of other groups may be underrepresented. Responders may have had stronger views or more experience with standing frames than nonresponders. Parents reported their children's views, and children themselves were not surveyed. Professionals were asked about GMFCS IV and V, but parents answered about their own child; some parents had children with better mobility, which may explain differences. The questionnaire did not separate standing for therapeutic range of movement from standing for functional mobility.
Declared interests
The authors declare that the work submitted is their own and copyright has not been breached. No funding source or competing interests are stated in the supplied text.
The easy way to misread this
Do not read the reported benefits as proof that standing frames improve bone density, hip position, bladder or bowel function. This survey recorded perceptions, prescribing practice and barriers; it did not test outcomes or compare children who used frames with those who did not.