PTOTSLPOtherAutism : the international journal of research and practice2019

The Gestalt of functioning in autism spectrum disorder: Results of the international conference to develop final consensus International Classification of Functioning, Disability and Health core sets.

Sven Bölte, Soheil Mahdi, Petrus J de Vries and 9 others

PMID 29378422

WHAT IT FOUND

Experts chose a list of autism functioning areas to assess: daily tasks, participation, environment and supports across ages.

This is a framework, not evidence that a treatment works.

Key findings

01The Comprehensive Core Set included 111 of the 164 second-level candidate categories identified by the preparatory studies.

02The Comprehensive Core Set contained 59 activities and participation categories, 31 environmental factors categories, 20 body functions categories, and 1 body structure category.

03The Common Brief Set contained 60 categories, including 46 from the initial ranking and cut-off process and 14 found in all age-specific brief sets.

STILL TO COME

How it was doneWhat they foundWhat it means for PTsWhat it means for OTsWhat it means for SLPs

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What it does not show

The article reports category selection and consensus voting, not patient outcomes after using the core sets. The final decisions were made by 20 experts. Individuals with autism and family members were involved in preparatory studies but were not expressly recruited for the conference, and only one expert was a mother of a child with autism. Some regions and professions were underrepresented. Few PTs and social workers participated, no nurses were present, and some parts of the world were better represented than others. The full methods and data of the four preparatory studies are not reported here; they are described in separate publications. Some environmental factor categories are broad, such as immediate family, extended family and people in positions of authority, and the paper says they may not be detailed enough for specific intervention planning.

Declared interests

The supplied text says funding was received for the research, authorship and publication, and that the development of the core sets was supported, but it does not name the funder. Authors declared no conflict related to this article. Sven Bölte disclosed past work as author, consultant or lecturer for Shire, Medice, Roche, Eli Lilly, Prima Psychiatry, GLGroup, System Analytic, Kompetento, Expo Medica and Prophase, and royalties for textbooks and diagnostic tools from Huber/Hogrefe, Kohlhammer and UTB. Petrus J de Vries disclosed steering committee and advisory board roles for Novartis-funded clinical trials and guideline development in tuberous sclerosis complex. The other named co-authors declared no conflict related to this work.

The easy way to misread this

Do not read the core sets as proof that any treatment improves functioning in autism. They are expert-selected categories for describing functioning and environment, not tested interventions.

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