Results from the International Spinal Cord Injury Community Survey: The Lived Experience of People with Spinal Cord Injury in South-Eastern Brazil.
Daniela Mitiyo Odagiri Utiyama, Fábio Marcon Alfieri, Vinícius Delgado Ramos and 1 others
PMID 36254624WHAT IT FOUND
People with spinal cord injury in south-eastern Brazil reported spasticity as their most problematic health condition (33%) and neuropathic pain (13%).
Public spaces and long-distance transport were major environmental barriers.
Key findings
01Spasticity was the health condition participants considered most problematic (33%), followed by neuropathic pain (13%).
02Almost half reported that participating in many activities, including public transport, helping others, and having sex, was very problematic (47%).
03Most participants were employed before injury (77%), but only 16% received vocational rehabilitation after injury.
STILL TO COME
How it was doneWhat they foundWhat it means for PTsWhat it means for OTs
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What it does not show
The participants came from two well-resourced rehabilitation centres in south-eastern Brazil, so the results may not represent people with spinal cord injury in other settings. Some participants found it difficult to assess and express their perceptions of health, quality of life and disability, and to respond to survey questions. The survey did not include questions specific to rehabilitation treatment. Part of the sample was recruited for convenience. The study reports self-reported experiences and descriptive statistics, not treatment effects.
The easy way to misread this
Do not read this as evidence that any treatment improves these outcomes. It only describes what people reported after injury, so it cannot show what caused their problems or whether an intervention helps.