OTQualitativeArchives of rehabilitation research and clinical translation2026

Qualitative Analysis of User Experiences of a mHealth Self-Care Intervention for Care Partners of Individuals with Traumatic Brain Injury.

Rongqi Bei, Christopher M Graves, Sung Won Choi and 7 others

PMID 42326591

WHAT IT FOUND

In interviews, care partners of people with traumatic brain injury said the app's self-care prompts raised their awareness but often arrived at times they could not act, and its dashboard scores confused them.

Technical glitches lost data and notifications.

Key findings

01Personalised notifications helped some care partners notice their own needs and act on them, but many said the suggestions came at times they could not use them or were unrealistic given their caregiving demands.

02Around two-thirds said the dashboard charts raised their health awareness and prompted changes such as keeping up step goals or sleeping more, but several could not tell what the displayed scores meant and wanted to record why a day had been hard rather than just see a number.

03Technical problems across the multiyear trial, including operating system updates and Fitbit or app syncing failures, caused missed notifications, repeated prompts and lost data, and participants noticed.

STILL TO COME

How it was doneWhat they foundWhat it means for OTs

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What it does not show

36 of the 68 people invited were interviewed, and they volunteered, so those who took part may differ from those who did not. Interviews began only after an interim analysis showed no difference between the two arms, so the sample was weighted toward people who had finished the trial recently; those later participants met more of the app's technical problems than earlier ones did. 29 of the 36 participants were women, so the findings may not fit male care partners. Interviews were done by research staff the participants already knew, which may have made people more positive in what they said. The notification findings and the interview-materials findings come only from the 16 people in arm 2, because arm 1 never received notifications or saw notification materials. One researcher did the primary coding, although three co-authors met regularly to review and refine it. These are reports of experience. Nothing here shows whether the app changed caregiver strain, depression, anxiety, sleep or activity.

Declared interests

The authors state they have no financial or nonfinancial disclosures to make in relation to this project. No funder is named in the text provided.

The easy way to misread this

Do not read these interviews as evidence that the app worked or did not work. The trial itself found no difference between the two arms, and this study only asked people what using the app was like, so it cannot show whether the prompts changed caregiver strain, depression or sleep. The notification findings also come only from the 16 people whose arm received notifications.

Summarised by AI from the full paper, without a clinician reviewing it. Check it against the source before it changes what you do. Read it on PubMed →