Psychometric properties of the Pediatric Evaluation of Disability Inventory - Patient Reported Outcome: A cognitively accessible measure of functional performance.
Jessica M Kramer, Pengsheng Ni, Beth Pfeiffer and 5 others
PMID 39497492WHAT IT FOUND
Young people with developmental disabilities aged 14 to 22 could complete a self-reported functional performance measure on a three-point scale.
Scores were consistent across daily, social/cognitive and mobility domains, so it can support goal setting, not prove intervention effects.
Key findings
01Three-hundred and six young people with developmental disabilities, aged 14 to 22, participated in the self-report measure, and 65.03% identified as male.
02The final scored domains contained 27 daily activity items, 24 social/cognitive items, and 21 mobility items.
03The impact of measured subgroup differences on total scores was below 1.0 point: daily activity scores decreased by 0.45 points, social/cognitive scores increased by 0.25 points, and mobility scores decreased by 0.65 points.
STILL TO COME
How it was doneWhat they foundWhat it means for PTsWhat it means for OTs
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What it does not show
Participants were recruited by convenience, so the sample may not represent all young people with developmental disabilities. Disability category and IQ were not verified for all participants, and 3.9% gave no specific disability category. Two participants had recorded IQ scores below 35, so usability for people with very significant support needs is not established. The study did not test whether scores change after therapy or the smallest change that would be clinically meaningful. The groups used to check gender, age, and race/ethnicity differences were not large enough by the study's own criteria. Three gender-performance daily activity items were skipped by many participants and were removed from the scored daily activity domain.
The easy way to misread this
Do not read this as proof that the PEDI-PRO can measure therapy change. The study checked whether the self-report scores held together and behaved similarly across groups, but it did not test whether scores change after therapy or the smallest clinically meaningful change.