Prospective Characterisation of Age-Related Changes in Self-Injurious Behaviour in a Sample of Children With Global Developmental Delay Aged 2-12 Years.
Breanne J Byiers, Jaclyn Gunderson, Andrea Huebner and 1 others
PMID 40104903WHAT IT FOUND
Self-injurious behaviour is common and persistent in children with global developmental delay.
While rates remain high overall, children with no or mild intellectual disability showed increased interference with daily life as they aged, suggesting a need for ongoing support into adolescence.
Key findings
01Self-injurious behaviour was endorsed for 90% of participants over the study period, with interference rated as 'often' or 'always' in approximately 25% of assessments.
02For children with no or mild intellectual disability, the interference of self-injurious behaviour increased linearly with age, whereas it remained stable for those with moderate to profound intellectual disability.
03Specific behaviours like skin picking and rubbing/scratching showed age-related changes, with skin picking probability peaking near adolescence across all intellectual disability levels.
STILL TO COME
How it was doneWhat they foundWhat it means for PTsWhat it means for OTsWhat it means for SLPs
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What it does not show
The sample size for adolescents (over age 12) was small, making the observed increases in SIB during this period less certain. Data was collected via caregiver report, which is susceptible to bias and error in recall or interpretation of behaviours. The RBS-EC measures frequency but not severity or tissue damage, making it difficult to distinguish between mild self-directed behaviours and severe self-injury. Information on concurrent treatments or support services was not collected, so the effect of interventions on SIB trajectories could not be determined. Many participants were recruited during the COVID-19 pandemic, which may have influenced behaviour patterns. The sample was predominantly male and largely consisted of children with idiopathic autism, limiting generalisability to other genetic syndromes or female populations.
Declared interests
The authors declare no conflicts of interest.
The easy way to misread this
Do not assume that self-injurious behaviour decreases with age. While total scores may dip in early childhood for some groups, interference with daily life increases with age for children with no or mild intellectual disability, and specific behaviours like skin picking peak near adolescence.