Profile of social self-management practices in daily life with Parkinson's disease is associated with symptom severity and health quality of life.
Linda Tickle-Degnen, Michael T Stevenson, Sarah D Gunnery and 5 others
PMID 32233702WHAT IT FOUND
People with Parkinson's disease had seven social self-management profiles.
More engagement in home and community activities tracked with less severe symptoms and better quality of life; support engagement did not clearly explain outcomes.
Key findings
01The 90 participants formed seven social self-management profiles, with cluster sizes from 10 to 16 people.
02People in clusters with more engagement in home and community activities had less severe symptoms and less problematic health quality of life.
03Support engagement did not clearly explain differences in symptom severity or health quality of life, although clusters with high support were the healthiest within their symptom-severity sets.
STILL TO COME
How it was doneWhat they foundWhat it means for PTsWhat it means for OTs
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What it does not show
The study is cross-sectional, so it cannot show whether social self-management practices cause better outcomes or whether milder disease makes practices easier. The sample was relatively homogeneous demographically, despite recruitment targeting diversity. The concept of social self-management is new, and the measurement of Support especially needs further development. Cluster sizes were small, with a median of 13, so the profiles need validation in larger samples. The in-person assessment asked participants to time medications to be “on,” but four reported being “off” and 12 were unsure. Thirty-six participants (40%) showed mild cognitive impairment on the Montreal Cognitive Assessment, although the sample was selected to exclude dementia.
Declared interests
The authors reported no conflicts of interest. The article's publication types list NIH extramural research support.
The easy way to misread this
Do not conclude that engaging in more activities, health resources, or support causes lower Parkinson's symptoms or better quality of life. The study is cross-sectional and describes associations, not cause and effect. The paper states that practices and health are mutually interactive and that longitudinal analysis is needed for causal implications.