PTOTSurveyFrontiers in rehabilitation sciences2022

Parent-report health-related quality of life in school-aged children with cerebral palsy: A cross-sectional study.

Fábio Vila-Nova, Sofia Santos, Raul Oliveira and 1 others

PMID 36561730

WHAT IT FOUND

Portuguese parents of 68 school-aged children with cerebral palsy reported clinically low quality of life in physical well-being, mood and emotions, autonomy, and bullying compared with European norms.

Mobility and cognitive impairment were linked to lower scores.

Key findings

01Parents reported clinically low quality of life in physical well-being, moods and emotions, autonomy, and bullying compared with the norm.

02Physical well-being scores were associated with age, sex, cognitive impairment, and mobility.

03A regression model including age, sex, mobility, and cognitive impairment explained 32% of the variance in physical well-being scores.

STILL TO COME

How it was doneWhat they foundWhat it means for PTsWhat it means for OTs

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What it does not show

The study used a small convenience sample of 68 analysed proxy reports, so it may not represent all children with cerebral palsy. Children with severe intellectual disability, recent botulinum toxin injection, or recent orthopedic surgery were excluded, so the findings may not apply to those groups. Quality of life was measured only by parent proxy, and 95% of respondents were mothers, so the child's own report and other informants were not included. The design was cross-sectional, so the correlations and regression models show associations, not causes or treatment effects. Family income, parents' work and childcare routines, and psychological variables were not collected. The Social support and peers domain was statistically lower than the norm but did not meet the authors' clinical threshold. Bullying reports were not checked with the child, school staff, or other informants.

Declared interests

The supplied text reports ethics approval but no funding or conflict-of-interest statement.

The easy way to misread this

Do not read the lower parent-reported quality-of-life scores as proof that a rehabilitation programme will improve these domains. The study is cross-sectional, used mostly mothers' proxy reports, excluded children with severe intellectual disability and recent surgery or botulinum toxin injection, and reports associations rather than treatment effects.

Read it on PubMed →