PTOTSLPSurveyJournal of applied research in intellectual disabilities : JARID2021

Mediating effects of family functioning on the relationship between care burden and family quality of life of caregivers of children with intellectual disabilities in Mongolia.

Jinhee Kim, Hyunlye Kim, Seojin Park and 2 others

PMID 32954571

WHAT IT FOUND

Better family functioning partially buffered the link between care burden and poor family quality of life.

For therapists, assessing how a family communicates and copes is as crucial as measuring the child's disability, as these dynamics directly influence the family's well-being.

Key findings

01Family functioning had a significant partial mediating effect on the relationship between care burden and family quality of life.

02Care burden was negatively correlated with family functioning and family quality of life, while family functioning was strongly positively correlated with family quality of life.

03Caregivers reported a moderate level of burden, with 38.0% experiencing severe burden, which was highest among those with low income, no alternative caregivers, poor health, or children with severe disability.

STILL TO COME

How it was doneWhat they foundWhat it means for PTsWhat it means for OTsWhat it means for SLPs

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What it does not show

The sample was drawn from a single school in one region of Mongolia, limiting generalizability to other populations or rural areas. The study used translated versions of instruments originally developed in English or Korean, which may not fully capture cultural nuances of Mongolian family life. As a cross-sectional survey, the study cannot prove causation; it identifies associations and mediation patterns at a single point in time. Most caregivers were mothers (74.7%) and women (85.3%), so the findings may not reflect the experiences of fathers or other caregivers.

Declared interests

The authors declared no current or potential conflicts of interest.

The easy way to misread this

Do not assume that reducing care burden directly improves quality of life. The study shows family functioning is the critical mediator; interventions that ignore family dynamics may fail to improve well-being even if they reduce practical caregiving demands.

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