OTQualitativeChild: care, health and development2025

Improving Parent and Therapist Experiences of Codelivering Intensive Upper Limb Interventions for Children With Hemiplegia: A Qualitative Study Using the Theoretical Domains Framework.

Jill Massey, Vicki Tsianakas, Anne Gordon and 1 others

PMID 39871775

WHAT IT FOUND

Parents and therapists found codelivering intensive upper limb therapy challenging due to travel, time, and unclear roles.

Virtual sessions helped parents lead, but in-person clinics often kept them observing. Emotional support and clearer communication between hospital and community teams were key needs.

Key findings

01Parents and therapists reported significant practical burdens, including travel time, financial costs, and work disruption, which affected their ability to sustain the intensive home programme.

02In-person sessions were predominantly therapist-led with parents observing, whereas virtual sessions shifted the dynamic to allow parents to lead with therapist feedback.

03Communication gaps existed between hospital and community therapists, and parents were often unclear about the roles of community therapists or the channels for sharing progress.

STILL TO COME

How it was doneWhat they foundWhat it means for OTs

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What it does not show

The sample was small (10 families) and lacked diversity in background, culture, and ethnicity, limiting transferability. The lead author had previously worked in the service, which could introduce bias, although reflexivity and external review were used to mitigate this. Hospital therapists may have been more willing to participate than community therapists, potentially skewing the data towards the hospital perspective. The study did not measure adherence to intervention fidelity or intensity, so it cannot confirm whether the reported challenges actually reduced the dose of therapy received.

Declared interests

The authors declare no conflicts of interest. The study was funded by the National Institute for Health and Care Research (NIHR) via a Clinical Doctoral Research Fellowship.

The easy way to misread this

Do not interpret this study as evidence that codelivered intensive upper limb therapy improves functional outcomes more or less than other methods. This was a qualitative exploration of experiences and barriers, not a trial of efficacy. The findings describe what parents and therapists felt and struggled with, not what the therapy achieved for the children.

Read it on PubMed →