Education on the consequences of traumatic brain injury for children and adolescents with TBI and families/caregivers: a systematic scoping review.
Monique R Pappadis, Jennifer P Lundine, Maria Kajankova and 4 others
PMID 36426599WHAT IT FOUND
Pediatric TBI education mostly reached caregivers, not children alone.
Written discharge instructions were common, and adding verbal or multimedia support appeared better for recall.
Key findings
01The review included 42 unique studies of education or training for children and adolescents with TBI and their families/caregivers.
02Most studies focused on family/caregivers only or both family/caregivers and children, and very few were geared only to children or adolescents.
03Discharge instructions helped parents with return-to-activities decision-making but did not improve symptoms, and supplementing written instructions with verbal or multimedia instructions was more effective for recall.
STILL TO COME
How it was doneWhat they foundWhat it means for OTsWhat it means for SLPs
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What it does not show
The review did not appraise the quality of individual studies. The included studies varied in purpose, content, delivery, frequency, and intensity. Many studies used measures developed by the authors. Only English-language studies were included. A small group of researchers contributed, so the results may reflect specific groups rather than diverse sites. The review predates increased use of technology and web-based platforms during the pandemic. Many interventions were multi-component, and the active ingredients were unclear.
Declared interests
The authors reported no conflicts of interest.
The easy way to misread this
Do not conclude that pediatric TBI education is proven effective. This review did not assess effectiveness, and several studies found no difference from usual information.