OTSLPQualitativeJournal of applied research in intellectual disabilities : JARID2022

Early positive approaches to support (E-PAtS): Qualitative experiences of a new support programme for family caregivers of young children with intellectual and developmental disabilities.

Nick Gore, Jill Bradshaw, Richard Hastings and 2 others

PMID 35289031

WHAT IT FOUND

Caregivers said the E-PAtS group helped them feel normal, speak openly, gain confidence, and use small communication and daily routine strategies they reported as helpful for their child.

Key findings

01Caregivers described the group as a place where they felt normal and could say things they could not say to family or friends.

02Caregivers reported increased confidence in their parenting and greater willingness to seek support and speak up for services.

03Caregivers reported using new strategies and seeing small child changes such as reduced meltdowns and more independent drinking.

STILL TO COME

How it was doneWhat they foundWhat it means for OTsWhat it means for SLPs

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What it does not show

Caregivers reported their own experiences, so the study cannot show that E-PAtS caused changes in caregivers or children. The method was purely qualitative and relied on self-report, with possible recall and social desirability bias. Interviews happened within two months of the programme, so longer-term outcomes were not assessed. The interviewed caregivers were a subset of families who attended E-PAtS through the organisations involved, so experiences may not represent all families. The study did not collect data on other programmes families accessed, so other supports may have contributed to reported experiences. The authors could not explore how family context or socio-economic situation related to engagement and experience. Because the whole group programme was evaluated, the study cannot say which component, such as peer discussion, co-facilitation or session content, mattered most.

The easy way to misread this

Do not read this as evidence that E-PAtS improves child behaviour, communication or caregiver wellbeing. The study used a purely qualitative method and self-reported experiences within two months.

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