PTOTQualitativeFrontiers in rehabilitation sciences2023

Development of a tailored intervention targeting sedentary behavior and physical activity in people with stroke and diabetes: A qualitative study using a co-creation framework.

Stefan Sjørslev Bodilsen, Mette Aadahl, Troels Wienecke and 1 others

PMID 36860816

WHAT IT FOUND

Stroke survivors with diabetes rejected generic home exercises as overwhelming.

They wanted movement woven into daily tasks, not added on top. Fatigue was the main barrier to activity. They asked for early, tailored plans that respect their energy limits and help them stay independent.

Key findings

01Participants described generic self-managed home exercises as overwhelming due to fatigue and lack of motivation, preferring physical activity to be rephrased as movement integrated into everyday life.

02The primary motivator for engaging in activity was preserving their sense of self and ability to perform activities of daily living independently.

03Fatigue was consistently identified as a major barrier to achieving these goals and changing behavior.

STILL TO COME

How it was doneWhat they foundWhat it means for PTsWhat it means for OTs

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What it does not show

The sample was very small, consisting of only three male stroke survivors and one female relative, which limits the transferability of findings to women or a broader population. The study did not test the efficacy of the developed intervention; it only describes its creation. Participants may have been more motivated or resourceful than the general population, as co-creation requires high engagement. Data saturation was not viewed as a necessity due to recruitment difficulties, which may mean some perspectives were missed.

Declared interests

The study was supported by a Research Grant from Steno Diabetes Center Sjaelland.

The easy way to misread this

Do not assume the ELiR intervention works. This paper describes how the intervention was created using qualitative feedback, but it reports no outcomes or evidence that the intervention successfully reduces sedentary behavior or improves physical activity.

Read it on PubMed →