PTOTSLPSurveyJournal of autism and developmental disorders2025

Community Priorities for Outcomes Targeted During Professional Supports for Autistic Children and their Families.

Rhylee Sulek, Chris Edwards, Ruth Monk and 3 others

PMID 38642180

WHAT IT FOUND

Community priorities for autistic children focus on wellbeing and understanding, not changing autistic traits.

Practitioners rated reducing sensory seeking and social skills training as inappropriate more often than parents did. All parent-focused outcomes were considered appropriate and medium-to-high priority.

Key findings

01Improving child mental wellbeing was the highest priority outcome, while reducing sensory seeking and avoidant behaviours was the lowest priority across all participants.

02Practitioners were significantly more likely than non-practitioners to view reducing sensory seeking, reducing focused interests, social skills training, and changing play to be neurotypical as inappropriate targets of support.

03All parent-focused outcomes were unanimously rated as appropriate targets for professional supports.

STILL TO COME

How it was doneWhat they foundWhat it means for PTsWhat it means for OTsWhat it means for SLPs

Read the rest of this summary

You get three full summaries a month, free, and we do not ask for a card. Search, the TL;DRs and your library stay unlimited either way.

Already have one?

What it does not show

Participants were recruited via social media and professional networks, which may bias the sample towards those already engaged with autism advocacy or neurodiversity-affirming views. Most participants identified as female and of European heritage, limiting generalisability to other genders and cultural backgrounds. Autistic participants had largely not accessed professional supports during childhood, so their ratings may not reflect the experience of children currently receiving therapy. The study relied on self-report, so participants' stated priorities may not match what they actually do or receive in daily life. Māori, Aboriginal, and Torres Strait Islander peoples were not well represented, so findings cannot be generalised to Indigenous communities.

Declared interests

The study was funded by Griffith University. Three autistic individuals received an honorarium for their involvement in the research team.

The easy way to misread this

Do not assume that all practitioners share the view that reducing sensory seeking or social skills training is inappropriate. Parents were significantly more likely than non-parents to rate these as appropriate targets, indicating a potential conflict between community and parent expectations that requires negotiation.

Read it on PubMed →