PTOTSLPSurveyAutism : the international journal of research and practice2024

Community perspectives on the appropriateness and importance of support goals for young autistic children.

Hannah Waddington, Hannah Minnell, Lee Patrick and 4 others

PMID 37203137

WHAT IT FOUND

Autistic adults, parents and professionals in New Zealand and Australia agreed that supporting the adults around the child, reducing harmful behaviours and improving quality of life were the top priorities for young autistic children.

Goals targeting autism characteristics, play and participation were rated lowest priority, with autistic adults finding many of these inappropriate.

Key findings

01The highest priority goals across all groups were adult supports, followed by reducing harmful behaviour and quality of life.

02Autism characteristics and play skills were the lowest priority domains overall.

03Autistic adults were significantly more likely than parents or professionals to view goals in the autism characteristics, play skills and participation domains as inappropriate.

STILL TO COME

How it was doneWhat they foundWhat it means for PTsWhat it means for OTsWhat it means for SLPs

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What it does not show

Autistic children themselves were not included in the survey, so their direct perspectives are unknown. The sample was recruited via snowball sampling through autism organisations, which may not represent the wider population. Few autistic adults in the sample had an intellectual disability or had received early support services, limiting the generalisability to those groups. Participants rated goals for a hypothetical child, which may not reflect their actual priorities for a specific child. The survey used short descriptions of complex disability models, which may have oversimplified participants' views.

Declared interests

H.W. is the Clinic Lead of the Victoria University of Wellington Autism Clinic and A.J.O.W. is the Director of CliniKids, both of which provide support to young autistic children. Funding was provided by the National Health and Medical Research Council and a Victoria University of Wellington summer scholarship.

The easy way to misread this

Do not interpret the low priority of 'autism characteristics' goals as a rejection of all support for autistic children. The study found that communication and daily living skills were still high priorities for most participants. The low ratings specifically reflect a shift away from goals aimed at normalising behaviour or curing autism, rather than a lack of desire for support.

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