Community Conversations: Stakeholder-Identified Research Priorities to Foster Community Participation for Individuals With Intellectual and Developmental Disability.
Roxanna M Bendixen, Teal Benevides, Roger Ideishi and 5 others
PMID 36188970WHAT IT FOUND
Stakeholders with intellectual and developmental disabilities prioritized measuring social belonging and safety over clinical metrics.
They identified transportation, information access, and staff training as key community barriers, calling for research that tracks real-world inclusion rather than just medical outcomes.
Key findings
01Stakeholders identified six specific research priorities, with 'Measuring Success' in community organizations as the overarching theme.
02Participants defined meaningful outcomes as feelings of belonging, safety, and social engagement, rather than traditional clinical or vocational metrics.
03Community-level interventions were viewed as ways to reduce environmental barriers, such as sensory stimulation or negative staff attitudes.
STILL TO COME
How it was doneWhat they foundWhat it means for PTsWhat it means for OTsWhat it means for SLPs
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What it does not show
The study reports stakeholder opinions and priorities, not the effectiveness of any specific intervention. Participants were recruited from three specific US regions, which may not represent all communities. The definition of 'community participation' was broad, and results reflect subjective experiences rather than objective health outcomes.
Declared interests
Funded by the Patient Centered Outcomes Research Institute (PCORI). Authors declared no commercial or financial conflicts of interest.
The easy way to misread this
Do not interpret these priorities as evidence that specific community interventions work. This paper identifies what stakeholders want researched, not what has been proven effective.