Barriers to Healthcare for Latinx Autistic Children and Adolescents.
Luke P Grosvenor, Ryan J Cohen, Nancy P Gordon and 5 others
PMID 38231382WHAT IT FOUND
For Latinx families with autistic children, cost barriers were highest among those with commercial insurance, while language barriers were highest among Spanish speakers.
Spanish-speaking caregivers reported significant gaps in knowing services existed, digital access issues, and lower educational attainment compared to English speakers.
Key findings
01Caregivers with commercial insurance were significantly more likely to report high co-pays and difficulty paying for services as barriers compared to those with government insurance.
02Spanish-speaking caregivers were significantly more likely than English-speaking caregivers to report not knowing that ASD services were available or how to access them.
03Nearly 30% of Spanish-speaking caregivers were unable to use the internet for health tasks on their own, and almost 60% were not signed up for the health plan member portal, compared to much lower rates in English speakers.
STILL TO COME
How it was doneWhat they foundWhat it means for PTsWhat it means for OTsWhat it means for SLPs
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What it does not show
The study only included families whose children had already received an ASD diagnosis, so it does not capture barriers faced by families struggling to get a diagnosis in the first place. Participants were all members of one integrated health system (Kaiser Permanente), which may have better resources and care coordination than other systems, limiting generalizability. Response bias is possible, as caregivers who are more engaged with the healthcare system may have been more likely to complete the survey than those facing the greatest barriers. The study did not have complete data on the functional severity of the children's autism, so it could not determine if severity levels influenced service use or barriers differently across groups.
Declared interests
The study was funded by Kaiser Permanente, the healthcare system from which the participants were recruited.
The easy way to misread this
Do not assume that Spanish-speaking families have lower service utilization because they do not want therapy. The data shows they face distinct barriers: they are less likely to know services exist or how to access them, and they have lower digital access. Commercially insured families, conversely, are more likely to be blocked by cost. Tailor your outreach: explain availability and access steps clearly to Spanish speakers, and discuss cost/co-pay assistance with commercially insured families.