24-hour activity for children with cerebral palsy: a clinical practice guide.
Olaf Verschuren, Raquel Y Hulst, Jeanine Voorman and 4 others
PMID 32852777WHAT IT FOUND
A parent-completed checklist covering sleep and activity for children with cerebral palsy took 5 to 10 minutes on average.
Clinicians reviewed it in no more than 2 minutes, and pilot feedback was positive, but validation is still needed.
Key findings
01The checklist asks useful questions about physical activity and sleep in children with cerebral palsy and is designed to identify whether a more thorough evaluation is needed.
02In pilot testing with 79 parents, the checklist was clear and easy to answer, and completion took 5 to 10 minutes on average.
03Clinicians reported that reviewing and interpreting the checklist took no more than 2 minutes and that it increased awareness and discussion about 24-hour activity behaviours.
STILL TO COME
How it was doneWhat they foundWhat it means for PTsWhat it means for OTs
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What it does not show
The checklist has not been validated, so its accuracy for identifying sleep or physical activity problems is unknown. The paper reports development and pilot feedback, not a trial of whether the checklist changes sleep, activity, or health outcomes. Pilot feedback came from 79 parents in three settings, with an 80% response rate in a consecutive sample, so it may not represent all children with cerebral palsy. Child-oriented questions could not be answered by some children who were too young or unable to understand them. There is no validated algorithm or clinical care pathway for acting on the checklist results.
The easy way to misread this
Do not read the positive pilot feedback as proof that the checklist improves sleep, activity, or health. The paper reports usability and feasibility feedback, not outcome results, and states that the checklist needs further validation and has no validated algorithm or clinical care pathway.