Young People With and Without Intellectual Disability Accessing Mental Health Services: Evaluating Psychosocial Functioning Outcomes Using Electronic Health Records.
Z Sienna Pan, Carlo Schuengel, Barry Coughlan and 4 others
PMID 41319029WHAT IT FOUND
Young people with intellectual disability in mental health services often remained impaired at discharge: 80% were still impaired, versus 45% of matched peers.
Their lower starting functioning and comorbidities were linked to outcomes.
Key findings
01Young people with ID started and ended mental health service episodes with lower global functioning scores than matched young people without ID.
02After a service episode, 80% of young people with ID remained in the impaired range, compared with 45% of matched young people without ID.
03Young people with severe/profound ID and a prevalent comorbidity had larger average improvements than those with severe/profound ID alone, but over 90% still had impairment at discharge.
STILL TO COME
How it was doneWhat they foundWhat it means for OTs
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What it does not show
The study did not record what treatment each young person received, and some young people were seen for neurodevelopmental diagnostic assessment only, so improvement cannot be attributed to a specific intervention. The data came from one mental health trust in London, and the cohort was more socioeconomically deprived than the average boroughs in England. The CGAS is a global measure and was not designed to capture variation in intellectual disability, so a score can reflect cognitive impairment, mental health, emotional and other psychosocial factors together. Severe and profound ID were combined for some comorbidity analyses because the separate groups were too small, and only the three most prevalent comorbidities were modelled. Missing data were imputed, while clinical significance analyses used the original sample, so the two sets of results are not based on exactly the same handling of missingness. Episodes were analysed separately, so a young person with multiple episodes could be counted more than once. Most diagnoses of ID were entered after 01 January 2007, which may limit earlier record completeness.
Declared interests
The authors declare no conflicts of interest. The study was funded by the NIHR Health and Social Care Delivery Research Programme, What Works for Early Intervention and Children's Social Care, and the NIHR Applied Research Collaboration East of England at Cambridgeshire and Peterborough NHS Foundation Trust.
The easy way to misread this
Do not read the improvements after CAMHS episodes as proof that a particular therapy worked. The dataset did not record what treatment each young person received, some young people were seen for diagnostic assessment only, and young people with ID still had lower discharge functioning than matched peers.
Summarised by AI from the full paper, without a clinician reviewing it. Check it against the source before it changes what you do. Read it on PubMed →