OTSLPOtherAutism research : official journal of the International Society for Autism Research2025

Waiting Times and Influencing Factors in Children and Adults Undergoing Assessment for Autism, ADHD, and Other Neurodevelopmental Differences.

Donald Maciver, Anusua Singh Roy, Lorna Johnston and 4 others

PMID 39994914

WHAT IT FOUND

Children waited a median 525 days and adults 252 days for diagnosis.

Complex histories lengthened children's waits but shortened adults' waits. Meeting quality standards was not clearly linked to longer waits.

Key findings

01The median total wait from referral to diagnosis was 525 days for children and adolescents and 252 days for adults.

02More medical and developmental history factors were linked to longer waits for children and shorter waits for adults.

03For children, higher adherence to quality standards was linked to shorter waits; for adults, moderate adherence to assessment standards was linked to longer waits.

STILL TO COME

How it was doneWhat they foundWhat it means for OTsWhat it means for SLPs

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What it does not show

Only 10 of 14 health boards participated, and teams volunteered, so teams under severe pressure may have opted out. Cases were selected using team quotas and reverse chronological order, not random sampling, so the sample may not represent all services. Adult services were assessed using children's quality standards because adult standards were absent. Adult services may be more restrictive, often requiring moderate to severe mental illness, so adult waiting times may not reflect broader access. The models did not include age, parental education or income, and missing data were handled by dropping cases from the models. Ethnic minorities were very few, so demographic risk analysis was limited. The study did not examine referrals dismissed rather than placed on waiting lists. This was an observational case note review, so links between factors and waiting times are not proof of cause.

Declared interests

The Scottish Government funded the National Autism Implementation Team, which authored the study; the authors declared no conflicts of interest.

The easy way to misread this

Do not read the shorter waits linked to higher quality-standard adherence as proof that enforcing standards will reduce waiting times. This was a retrospective case note review with voluntary teams and no randomisation, so the associations may reflect service or case differences.

Read it on PubMed →

Waiting Times and Influencing Factors in Children and Adults Undergoing Assessment for Autism, ADHD, and Other Neurodevelopmental Differences. — Applied Evidence