Using Community-Based Participatory Research to Create Animated Videos to Attenuate Disparities in Access to Kidney Transplant Information.
Liise K Kayler, Barbara Breckenridge, Cheryl Thomas and 5 others
PMID 36514821WHAT IT FOUND
Community feedback refined kidney transplant education videos, leading to specific changes like clarifying GFR, showing diverse skin tones, and adding Spanish voiceovers.
Researchers retained final design control, so these videos are a tool for discussion, not a proven intervention to increase transplants.
Key findings
01Participants requested changes to improve clarity and inclusivity, such as explaining glomerular filtration rate (GFR), using diverse skin tones, and ensuring living donation was not presented as the only option.
02Spanish voiceovers were added to all animations based on community recommendations, though the translation process lacked formal backward translation due to funding constraints.
03Researchers primarily generated the final video design solutions because community members preferred not to spend excessive time reaching consensus, limiting the partnership to an advisory role.
STILL TO COME
How it was doneWhat they foundWhat it means for RNs
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What it does not show
The study did not test whether the videos actually improved patient outcomes or transplant rates. Community members had an advisory role; researchers made the final design decisions. Spanish translations were not validated using backward translation due to funding. The sample was limited to one transplant center in a specific urban area. Participants were English-speaking, which may exclude non-English speakers from the feedback process despite the Spanish videos.
Declared interests
The authors declared no potential conflicts of interest. The study was funded by the National Institutes of Health (N.I.H., Extramural).
The easy way to misread this
Do not assume these videos have been proven to increase kidney transplant access or improve patient understanding. This was a development and refinement process, not a clinical trial of efficacy.