Understanding Health-Related Quality of Life of Caregivers of Civilians and Service Members/Veterans With Traumatic Brain Injury: Establishing the Reliability and Validity of PROMIS Social Health Measures.
Noelle E Carlozzi, Phillip A Ianni, Rael T Lange and 7 others
PMID 30075148WHAT IT FOUND
PROMIS social health measures provide reliable, rapid scores for caregivers of people with TBI.
They accurately distinguish caregivers of those with low functional ability, who report significantly worse social health than the general population, enabling targeted support.
Key findings
01PROMIS social health measures showed acceptable internal consistency and rapid administration times for caregivers of people with TBI.
02Caregivers of individuals with low functional ability reported significantly worse social health than the general population, while caregivers of high-functioning individuals did not.
03Caregivers of service members and veterans consistently reported lower health-related quality of life than caregivers of civilians across most social health domains.
STILL TO COME
How it was doneWhat they foundWhat it means for PTsWhat it means for OTsWhat it means for SLPs
Read the rest of this summary
You get three full summaries a month, free, and we do not ask for a card. Search, the TL;DRs and your library stay unlimited either way.
What it does not show
Test-retest reliability was poor for caregivers of service members and veterans over a three-week period, suggesting these scores may be less stable in this population. The samples were primarily white and highly educated, so results may not apply to more diverse populations. Traumatic brain injury severity was unknown for 60% of the service member/veteran sample. The study did not assess whether these measures can detect changes in caregiver health over time or in response to treatment.
Declared interests
Funded by the National Institute on Disability, Independent Living, and Rehabilitation Research and the Department of Defense.
The easy way to misread this
Do not assume these measures are stable over time for caregivers of service members and veterans, as test-retest reliability failed in this group. Do not use them to track progress or change, as responsiveness was not evaluated.