RNQualitativeJournal of midwifery & women's health2026

The Patient, the Provider, and the TikTok Creator: Qualitative Analysis of the Content and Quality of Videos on Prenatal Genetic Screening.

Erin P Johnson, Naomi O Riches, Stephanie Arceneaux and 4 others

PMID 41969147

WHAT IT FOUND

Prenatal genetic screening videos on TikTok were often inaccurate. 42.2% used gender instead of sex, and 31.3% framed NIPT as determining fetal sex.

Patient videos had high engagement but were often rated poor or very poor.

Key findings

0142.2% of videos used gender instead of sex when discussing chromosomal testing.

0231.3% of videos used language suggesting NIPT could determine fetal sex or gender.

03Patient videos were rated poor (17, 30%) or very poor (32, 57%) for information quality.

STILL TO COME

How it was doneWhat they foundWhat it means for RNs

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What it does not show

The study analysed publicly posted videos, not patients or clinicians, so it cannot show what patients understood or how they acted on the information. It captured only the top-viewed videos for three hashtags on one download date, January 7, 2025, and excluded non-English videos, videos longer than 10 minutes, and academic or unrelated content. TikTok views are not random; the platform's secret algorithms may prioritise attention-grabbing content, and the API may have shaped the data before researchers saw it. DISCERN was designed for written health material, and the team simplified it for videos; this may affect how well it measures quality of short TikTok content. After initial double coding, most videos were coded by one person, with questions resolved in weekly meetings, so independent coding was limited. Only 83 videos were included for the main coding, and 70 for the second tier. The team included academics and researchers without advanced degrees, and the authors say their position may influence interpretation.

Declared interests

The authors declared no known competing financial interests or personal relationships. The named funders were the Department of Obstetrics and Gynecology at the University of Utah and the National Institutes of Health.

The easy way to misread this

Do not treat patient TikTok videos as good prenatal screening education because they receive many views. The study found patient videos had high engagement but were often rated poor or very poor for information quality and frequently used inaccurate sex and gender language.

Read it on PubMed →