TBI-CareQOL family disruption: Family disruption in caregivers of persons with TBI.
Noelle E Carlozzi, Rael T Lange, Nicholas R Boileau and 8 others
PMID 31841019WHAT IT FOUND
A brief caregiver questionnaire consistently measured family disruption among TBI caregivers.
Higher scores mean more interference in family life, and caregivers of low-functioning persons with TBI reported more disruption.
Key findings
01The final Family Disruption scale contains three items, and higher scores mean more family disruption.
02Caregivers of people with TBI who were low functioning reported more family disruption than caregivers of people who were high functioning in both the service member/veteran and civilian groups.
03Scores were stable when a subset of caregivers repeated the measure two to three weeks later.
STILL TO COME
How it was doneWhat they foundWhat it means for OTs
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What it does not show
The caregivers were required to be caring for a person with TBI at least one year after injury, so the results may not apply to families in the first year. Paid professional caregivers were excluded, so the scale was not tested on paid support workers. The sample was mostly female and had high educational attainment, so it may not apply as well to male caregivers or caregivers with less education. 40 participants were missing Mayo-Portland Adaptability Inventory-4 data, so some known-groups analyses used fewer participants than the full sample. The final scale has only three items, which limits checking item bias and prevents computer adaptive testing. The authors call the support preliminary and say more research is needed to show whether the scale can detect change after interventions. A small floor effect appeared in the civilian group, so the scale may not distinguish very low disruption well in that group.
The easy way to misread this
Do not read this as evidence that screening caregivers improves patient or family outcomes. The study validated a brief measure, not an intervention.