Stress, Anxiety and Coping in Adults With Down Syndrome: An Exploratory Co-Research Study.
Ashley Scott, Ryan Gould, Liam Quidore and 11 others
PMID 39448390WHAT IT FOUND
Most adults with Down syndrome who answered this survey reported stress and anxiety.
They described social, creative, thinking, and physical coping strategies, and asked for mental health help that is accessible and not only talking therapy.
Key findings
0183.0% of respondents reported sometimes or often experiencing stress, and 64.1% said they were sometimes unable to handle responsibilities because of stress.
0257.7% reported sometimes feeling anxious, and 25% reported never feeling anxious.
03Coping responses fell into physical, social, creative, and thinking categories; employed respondents were more likely to report social coping, and no other differences by employment or sex were found.
STILL TO COME
How it was doneWhat they foundWhat it means for OTs
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What it does not show
The sample was small and may not represent all adults with Down syndrome. The survey was online and self-selected, so people already interested in mental health may have been more likely to respond. No validated mental health survey for adults with Down syndrome was available, so results may not match clinical settings. Fifteen respondents did not submit complete responses, and those with missing data were more likely to be Hispanic, have some college, and live in their parents' house. Seventy-five percent needed help completing the survey, and caregivers may have helped or influenced answers.
Declared interests
The authors reported no conflicts of interest.
The easy way to misread this
Do not treat 83.0% stress and 57.7% anxiety as clinical prevalence. The survey was not validated, respondents were self-selected, and some needed help completing it.