OTQualitativeRehabilitation psychology2020

Severity of military traumatic brain injury influences caregiver health-related quality of life.

Tracey A Brickell, Bridget A Cotner, Louis M French and 4 others

PMID 31971431

WHAT IT FOUND

Caregivers of service members with moderate, severe, or penetrating brain injury described higher stress, less personal time, and family strain than caregivers of those with mild or uncertain severity.

This was in 30 caregivers.

Key findings

01Thirty caregivers of service members and veterans with traumatic brain injury described eleven themes about how caregiving affected their health-related quality of life.

02The most common themes were no time for self or own needs (83.3%), poor physical health (80.0%), increased stress or anxiety (76.7%), and social isolation or loneliness (66.7%).

03Caregivers of service members with moderate, severe, or penetrating injury endorsed seven themes at a higher proportion than caregivers of service members with mild or equivocal injury.

STILL TO COME

How it was doneWhat they foundWhat it means for OTs

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What it does not show

Thirty caregivers is a small sample, and the injury severity groups had 11, 10, and 9 caregivers. The authors said formal comparisons were not meaningful because the sample was very small and underpowered. For some service members, medical records did not clearly show injury severity, so they were placed in an equivocal group rather than mild, moderate, severe, or penetrating. The severe group had mostly non-spouse caregivers, while the mild and equivocal groups had mostly spouse caregivers, so caregiver role may explain some differences. The study did not have enough data to separate spouse and non-spouse experiences. Some focus group speech was lost because multiple participants spoke at once and could not be attributed. The paper is qualitative, so it reports themes and descriptive percentages, not treatment effects.

Declared interests

No conflicts of interest were declared. The work was primarily supported by the Defense and Veterans Brain Injury Center, with support from the National Institutes of Health National Institute of Nursing Research grant R01NR013658 and the James A. Haley Veterans' Hospital.

The easy way to misread this

Do not conclude that moderate, severe, or penetrating injury directly causes worse caregiver quality of life. The study was qualitative, the groups were very small, and the authors said formal comparisons were not meaningful. The severe group also had mostly non-spouse caregivers, while the mild group had mostly spouse caregivers, so the caregiver role may explain part of the pattern.

Read it on PubMed →