OTSystematic ReviewChild: care, health and development2026

School and School-Related Experiences of Children and Adolescents With Inflammatory Bowel Disease: A Scoping Review.

Jenna Rice, Catherine Wilkinson

PMID 41954331

WHAT IT FOUND

Children with IBD miss more school than healthy peers: 24 days for Crohn's disease and 21 for colitis in one French sample, against 5.1 for controls.

Symptoms and hospital appointments drive most of it. Grades were largely unaffected; school support and social life were not.

Key findings

01Children and adolescents with IBD missed considerably more school than their healthy peers, and this was the most consistent finding across the included studies.

02Absence was driven mainly by IBD symptoms, which accounted for 48% to 78% of it in the studies that measured this, and by planned hospital or clinic appointments, which accounted for 27% to 78%.

03Educational outcomes were largely unaffected in the studies that examined them, while children and parents separately described low satisfaction with school and poor teacher understanding of IBD.

STILL TO COME

How it was doneWhat they foundWhat it means for OTs

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What it does not show

The review did no quality appraisal or risk-of-bias assessment, so a weak study counts the same as a strong one. Nothing here has been checked for how well it was carried out. Only 10 studies were included and 7 of them were quantitative. Just one was qualitative, so most of what is reported about school life comes from questionnaires, parents or medical records rather than from the children themselves. The search covered only three databases (ERIC, Taylor & Francis and SAGE). Relevant medical literature indexed elsewhere may have been missed. One author screened all titles and abstracts alone; only the full-text inclusion decisions were checked by a second reviewer. The 10 studies came from eight countries with different school systems and used different measures, so the numbers reported (for example, absence rates) cannot be pooled or compared directly with each other. Samples ranged from 25 to 2827 children and ages from 3 to 18, and the two studies that reported socioeconomic status were exceptional. Only one study stated participants' ethnicity. Thirteen of the 23 full texts read were excluded, two of them because the full text was unavailable, so some relevant work may be missing.

Declared interests

The only funding named is a grant from the British Educational Research Association to one of the authors. The paper's funding and conflicts of interest statement names the British Educational Research Association as the funder. No competing interests were declared.

The easy way to misread this

Do not read this as evidence that IBD damages academic achievement. Most of the included studies found no significant differences in educational outcomes, and some children achieved good marks while still struggling socially and emotionally at school. The review also appraised the quality of none of the ten studies, so it shows what has been studied rather than how strong that evidence is.

Summarised by AI from the full paper, without a clinician reviewing it. Check it against the source before it changes what you do. Read it on PubMed →