Psychometric Evaluation of the Parent Effort Scale.
Katherine B Bevans, Taye M Hallock, Aimee Piller and 1 others
PMID 36188932WHAT IT FOUND
Parents of children with autism reported needing more effort to help their child take part in home and community activities than parents of neurotypical children.
The scale reports effort separately for dressing, hygiene, sleep, home social activities, community activities, and healthcare.
Key findings
01Parents of children with autism spectrum disorder reported significantly higher effort on every Parent Effort Scale item than parents of neurotypical children.
02For children with autism spectrum disorder, greater symptom severity was associated with higher parent effort scores.
03The Parent Effort Scale subscales showed consistent responses and moderate or good stability on retesting.
STILL TO COME
How it was doneWhat they foundWhat it means for OTs
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What it does not show
The sample overrepresented wealthier, White, and suburban families, so results may not apply to less well-resourced, urban, rural, or culturally diverse families. The study included parents of children aged 2 to 7 years, so it does not show how the scale performs for older children or other age groups. The scale was evaluated in parents of children with autism spectrum disorder and neurotypical children, not in parents of children with other neurodevelopmental conditions. The Parent Effort Scale measures parents' perceived effort, not the child's capacity to complete the activity. The study evaluated measurement properties, not whether interventions reduce effort or improve participation. Some subgroup counts for scale scores were 165 parents of children with autism spectrum disorder and 139 parents of neurotypical children, while the participant description stated 167 and 137.
The easy way to misread this
Do not read high Parent Effort Scale scores as proof that a child cannot participate or that a therapy reduced effort. The scale measures parents' perceived effort, not child capacity, and the study did not test intervention effects.