Pepea Pamoja:† Applying the Ecological Validity Framework to co-develop a wellbeing and behavioural training program for caregivers of young children with autism in low-resource settings of Kenya and the United States.
Rebecca McNally Keehn, Mandy Rispoli, Chelagat Saina and 8 others
PMID 38967420WHAT IT FOUND
A 10-session group training program for caregivers of young children with autism was co-developed for Kenya and adapted back to rural Indiana.
It blends autism education, caregiver wellbeing, and daily-routine behavioral strategies. It has not been tested for effectiveness.
Key findings
01The Kenya program shifts practice from caregiver-child play to daily household routines such as feeding chickens, sweeping/tidying, and bathing.
02Pepea is a 10-session group program for five caregivers and two facilitators, with weekly sessions of flexible length.
03The Kenya program informed four additions to an Indiana caregiver training program: group telehealth, wellbeing check-ins, a case vignette, and end-of-session reflection.
STILL TO COME
How it was doneWhat they foundWhat it means for OTsWhat it means for SLPs
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What it does not show
No caregivers or children were enrolled in this report, so it shows what was built, not whether it helped. The program relied on expert facilitators, transportation stipends, childcare, and small groups, which may be hard to sustain. The paper does not report implementation fidelity, feasibility, or child and caregiver outcomes. The Indiana program changes were planned from team discussions, not tested in families.
Declared interests
The authors report no financial disclosures or conflicts of interest.
The easy way to misread this
Do not read this as evidence that Pepea improves child communication, behavior, or caregiver wellbeing. The paper reports program development and cultural adaptation only, with no enrolled caregivers, children, or outcome results.