Patient perceived needs and experiences of person-centered care in patients with inflammatory arthritis.
Kim van Slingerland, Margot J M Walter, Heleen A van der Stege and 3 others
PMID 35797563WHAT IT FOUND
Patients rated nurse-led arthritis care highly for respect and shared decisions, but felt they had little influence on care.
While pain and fatigue were discussed, problems with sex, household chores, and emotions were rarely addressed.
Key findings
01Patients reported the lowest scores for feeling able to influence their care and having their ability to cope strengthened.
02Fatigue and pain were the most common problems, and were also the most frequently discussed areas during consultations.
03Intimate relationships, household chores, and emotional well-being were the life areas where reported problems were least likely to be discussed.
STILL TO COME
How it was doneWhat they foundWhat it means for OTsWhat it means for RNs
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What it does not show
The study only included patients already seeing nurse practitioners, so it does not reflect the experience of those who do not. The population consisted mainly of patients with long-standing, stable disease, so findings may differ for newly diagnosed or active cases. Data collection occurred in winter, a period when arthritis symptoms often worsen, potentially skewing problem reports toward physical domains. This is a cross-sectional survey, so it cannot establish causality or determine if interventions would improve outcomes.
Declared interests
The authors report no conflicts of interest.
The easy way to misread this
Do not assume that high overall satisfaction scores mean all patient needs are met. The study shows that while basic interpersonal care is rated well, specific domains like sexuality, emotions, and household chores are frequently ignored, and patients feel they have little influence on their care.