Participation in Social Roles of Adolescents With Cerebral Palsy: Exploring Accomplishment and Satisfaction.
Dirk-Wouter Smits, Marloes van Gorp, Leontien van Wely and 5 others
PMID 33543052WHAT IT FOUND
Adolescents with cerebral palsy reported difficulty in most social roles, but were generally satisfied.
Accomplishment and satisfaction did not track together, so ask satisfaction separately rather than assuming it follows improved accomplishment.
Key findings
01Mean accomplishment scores were below 8.00 on all domains except Interpersonal relationships, which averaged 8.39; mean satisfaction scores were at least 3.00, with Responsibilities highest at 4.34.
02At similar accomplishment scores, satisfaction varied widely; for example, Education accomplishment about 7.00 had satisfaction scores ranging from 1.00 to 5.00.
03The childhood factors linked to accomplishment differed from those linked to satisfaction: accomplishment was more related to CP severity and motor capacity, satisfaction to maternal passive coping and parental education.
STILL TO COME
How it was doneWhat they foundWhat it means for OTs
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What it does not show
The analysed sample was small, and it excluded adolescents with incomplete social role data. The sample excluded adolescents with low intellectual abilities, and excluded adolescents had lower GMFCS levels, so results may not apply to more impaired groups. The study was exploratory and did not test an intervention, so it cannot show what treatment changes participation. The Employment domain had only 1 item and many not applicable responses, so it was omitted from further analyses. Satisfaction models explained much less variance than accomplishment models, so early determinants of satisfaction were not well captured. The Life-H was adjusted for age-appropriate wording and layout for some adolescents, which may affect comparability.
The easy way to misread this
Do not conclude that high average satisfaction means participation accomplishment is not a problem or that improving accomplishment is unnecessary. This was an exploratory observational study, and satisfaction varied by domain and did not closely follow accomplishment.