Parents of youth and young adults with intellectual and developmental disabilities: Barriers experienced during transition.

Only 11 parents took part, all of them mothers, and just two had daughters, so fathers and other carers are not represented. Ten of the 18 parents who booked an interview did not attend, and families volunteered through advocacy groups, so parents with different experiences may be missing. Everyone was recruited from Southern California, so the barriers described may look different where you work. Interviews were anonymous, so almost no demographic detail was collected and the researchers cannot say much about who these parents were. Only the five interview questions about barriers were analysed here; the rest of the interview, including views on a peer navigator programme, is not reported. The authors state that because the design is qualitative the findings are not generalisable.

The authors state they received no financial support for the research, writing or publication of the article, and declared no conflicts of interest.

Do not read this as evidence that any particular transition programme works or fails. It is 11 mothers' accounts of what got in their way, with no outcomes measured and no comparison group, and the barriers they describe are about service systems, waiting lists and funding rather than whether therapy or a specific programme helps.