Older Patients' Perspectives on Quality of Serious Illness Care in Primary Care.
Nebras Abu Al Hamayel, Sarina R Isenberg, Susan M Hannum and 3 others
PMID 29682975WHAT IT FOUND
Older primary care patients said patient-centered communication was the key to quality serious illness care, along with coordination, shared decisions, clinician skill and access.
Key findings
01Patient-centered communication was the overarching theme, prioritized by all patients and linked to coordination, shared decisions, clinician competence, and access.
02Patients valued transparent, direct communication about diagnoses, treatment options, and effects on daily activities, plus timely access to test results.
03Patients also valued care coordination, shared decision-making, clinician knowledge and compassion, and access to clinicians and insurance.
STILL TO COME
How it was doneWhat they foundWhat it means for RNs
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What it does not show
Only 20 patients from one suburban primary care clinic were interviewed, so the themes may not represent other settings or populations. All participants were enrolled in an advance care planning quality improvement initiative and may have been more aware of quality-of-care concepts than other patients. Most patients were at risk for serious illness rather than confirmed to have it, and some had no current serious illness, though many reflected on family experiences. Patients who declined interviews, non-English speakers, and patients outside white and African American racial groups were not included, so perspectives may differ. The study reports patient perceptions and priorities, not whether any communication or coordination practice improved patient outcomes. Pain, symptom, spiritual, and cultural needs were not emphasized by these patients, which does not mean they are unimportant for other patients.
Declared interests
The authors declared no potential conflicts of interest. The funding source was not stated in the supplied text.
The easy way to misread this
Do not conclude that these five themes prove better communication improves serious illness outcomes, or that pain, symptom, spiritual, and cultural needs can be deprioritized. The study reports patient perceptions in a small primary care sample, not tested effects.