OTQualitativeOTJR : occupation, participation and health2016

Latino Families' Experiences With Autism Services: Disparities, Capabilities, and Occupational Justice.

Amber M Angell, Gelya Frank, Olga Solomon

PMID 27585604

WHAT IT FOUND

Parents described some child improvements they linked to state-funded ABA, but most modified or opted out because required intensity, home presence, and rigid routines did not fit family life.

Key findings

01Parents described some child improvements they linked to ABA, including reduced challenging behaviors and better ability to learn and participate in family life.

02Most parents modified or opted out of ABA because they could not integrate required sessions into family life.

03Some families changed ABA by requesting a therapist whose style fit the child or insisting on a more naturalistic approach.

STILL TO COME

How it was doneWhat they foundWhat it means for OTs

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What it does not show

Only six families were studied intensively, and they were selected for diverse experiences, so the findings cannot represent all Latino families or all autism services. The authors explicitly do not claim a distinctively Latino pattern; the findings may reflect single or newly separated parents, or families who prefer less authoritarian child rearing. Child improvements were based on parents' reports and observations, not measured outcomes, so the study cannot show that ABA caused improvements. Some children also received occupational therapy, speech therapy, or other early intervention services, so the contribution of any single service cannot be separated. The study was conducted through Los Angeles County regional centers, so it may not apply to other states or service systems. Parents' decisions were shaped by work, health, other children, and family routines, so the study says little about families with different supports.

Declared interests

The authors declared no conflict of interest.

The easy way to misread this

Do not conclude that ABA caused the described improvements or that these findings show a Latino pattern. This is a qualitative study of six families, with no measured outcomes, and some children also received occupational therapy, speech therapy, or other early intervention services, so the contribution of ABA alone cannot be separated.

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Latino Families' Experiences With Autism Services: Disparities, Capabilities, and Occupational Justice. — Applied Evidence