OTSLPQualitativeAutism : the international journal of research and practice2025

'It depends entirely on the nature of those supports': Community perceptions of the appropriateness of early support services for autistic children.

Rhylee Sulek, Chris Edwards, Ruth Monk and 4 others

PMID 39629789

WHAT IT FOUND

50.2% said early supports are okay, and 48.2% said it depends.

Participants said supports should respect childhood, affirm autism and fit families.

Key findings

01In the 253 participants analysed, 50.2% said early support services were appropriate and 48.2% said appropriateness depended on the nature of the supports.

02Participants said supports should not dominate childhood, should fit routines and should not take away play, fun and socialising.

03Many participants warned that supports forcing masking, suppression or assimilation could cause trauma and suffering.

STILL TO COME

How it was doneWhat they foundWhat it means for OTsWhat it means for SLPs

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What it does not show

Only 179 of 326 participants from one source project and 74 of 181 from the other were analysed because they wrote an open-ended response. The authors note that people who wrote open-ended responses may have been more supportive of early supports than the full survey samples. The survey format did not allow follow-up questions, so unclear or brief written answers could not be explored further. The two source surveys asked slightly different questions about preschool children or autistic children aged 0 to 12 years, which may have affected responses. Participants were recruited through autism-related social media groups and the authors' networks, many of which promote neurodiversity-affirming views, so the sample may not represent all families or clinicians. Autistic children themselves were not included, so the findings are adult and practitioner perceptions rather than children's own experiences. The sample was 84.9% female, 41.1% European Australian and 40.3% European New Zealand, and 35.2% held an undergraduate degree and 33.6% a postgraduate degree.

Declared interests

H.W. is the Clinic Lead of the Victoria University of Wellington Autism Clinic, and A.J.O.W. is the Director of CliniKids, both of which provide support to young autistic children. The work was funded by Rhylee Sulek's Griffith University Postdoctoral Fellowship.

The easy way to misread this

Do not conclude that the study tested specific services or measured child outcomes. It asked adults whether supports seemed appropriate, so it cannot tell you whether a particular therapy works.

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