RNSurveyJournal of clinical nursing2022

Involuntary treatment in dementia care at home: Results from the Netherlands and Belgium.

Angela M H J Mengelers, Vincent R A Moermans, Michel H C Bleijlevens and 5 others

PMID 32918342

WHAT IT FOUND

Involuntary treatment was used in 428 of 844 people with dementia at home, with common measures including hiding medication, forced hygiene, restricted communication or transport.

It was linked to living alone, greater dependency, lower cognition and caregiver burden.

Key findings

01Involuntary treatment was used in 428 of the 844 people with dementia analysed.

02Use was associated with living alone, higher ADL dependency, lower cognitive ability, greater caregiver burden and receiving home care in Belgium.

03Family caregivers requested involuntary treatment in 79.0% of cases, and nurses applied it in 57.9% of cases.

STILL TO COME

How it was doneWhat they foundWhat it means for RNs

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What it does not show

The study was cross-sectional, so it cannot show that living alone, dependency, cognition or caregiver burden caused involuntary treatment. Involuntary treatment was reported by professional caregivers, not directly by patients or family caregivers. Data came from selected regions in the Netherlands and Belgium, so they may not represent other countries or all home care services. Participants were selected differently in the two countries, and the Dutch and Belgian groups differed in ADL dependency and cognitive functioning. Only people with a formal physician diagnosis of dementia receiving professional home care were included, so findings may not apply to earlier dementia, nursing home care or hospital care.

The easy way to misread this

Do not read the associations as proof that living alone, dependency, lower cognition or caregiver burden caused involuntary treatment. This was a cross-sectional survey with caregiver-reported data, so it describes patterns rather than causes.

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