Integrating Stakeholder Voices to Improve Occupational Therapy Research for Minoritized Autistic Hispanic and Latino Communities.
Lady Rios-Vega, Kristin Rising, Brian Freedman and 6 others
Twenty-five Hispanic and Latino stakeholders rated their involvement in culturally adapting an OT intervention highly, and their input directly shaped recruitment, data safety, and dissemination.
This is a process evaluation, not a test of the intervention's effectiveness.
Key findings
1Stakeholders across all three advisory boards reported high engagement frequency and quality, with frequency ratings consistently slightly above quality ratings across every board.
2Stakeholder input directly shaped recruitment materials (including replacing the puzzle-piece symbol with the infinity symbol and using lay language), data safety procedures (adding extra passwords, avoiding public advertisement of session dates and locations), and dissemination (stakeholders served as coauthors on peer-reviewed publications and one copresented at a national occupational therapy conference).
3Engagement evolved over the first year from initial input and consultation to deeper collaboration and shared leadership; stakeholders described feeling valued and heard and praised the bilingual format.
to read the rest of this summary — three full summaries a month, no card.
Already have an account?
What it does not show
Stakeholder ratings may be inflated by social desirability bias, particularly because this population is rarely included in research and may feel motivated to support the project. The findings reflect the perspectives of stakeholders who were consistently present and engaged, not those who face greater barriers to sustained participation. Qualitative data came from only three open-ended survey questions rather than interviews or focus groups, limiting the depth and nuance of the findings. This is a first-year, single-site evaluation of one project's engagement process; it does not compare engagement strategies or report any patient-level clinical outcomes.
Declared interests
The study was supported by the Patient-Centered Outcomes Research Institute (PCORI). The authors state that the publication's views are their own and do not necessarily represent PCORI's, its Board of Governors, or its Methodology Committee. Portions of the article were refined with AI assistance for grammar and syntax only; all substantive content was developed and verified by the authors.
Summarised by AI from the full paper, without a clinician reviewing it. Check it against the source before it changes what you do. Read it on PubMed →