OTOtherNursing research2020

Identifying Individuals With Intellectual Disability Within a Population Study.

Michelle S Franklin, Susan G Silva, Gary R Maslow and 3 others

PMID 32969948

WHAT IT FOUND

A database method identified 441 adolescents and young adults with intellectual disability by combining low picture vocabulary scores with adaptive limitation reports.

It helps researchers find intellectual disability in population data, not clinicians diagnose patients.

Key findings

01The authors developed an intellectual disability indicator that required a low picture vocabulary score plus at least one adaptive functioning limitation.

02The final identified subsample was 441 adolescents and young adults after applying the indicator and national survey weights.

03The method excluded 1,048 adolescents and young adults who had a low picture vocabulary score but no adaptive limitation, so it may miss some people with intellectual disability.

STILL TO COME

How it was doneWhat they foundWhat it means for OTs

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What it does not show

The picture vocabulary score may not be equivalent across cultures, and young people with reduced educational opportunities may score lower than those with better opportunities. Add Health had a limited range of variables available to assess intellectual and adaptive functioning. The method may miss some people with intellectual disability because 1,048 adolescents and young adults with a low picture vocabulary score but no adaptive limitation were excluded. Self-report may be difficult for young people with significant intellectual disability and may reflect reluctance to report disability. Learning disability and physical disability features can risk invalid intellectual disability classification if taken alone. ADL questions in Wave 1 were skipped unless extremity or physical limitation was reported, so adaptive limitations from intellectual disability alone may have been missed.

Declared interests

The authors report no conflicts of interest. The article metadata lists NIH extramural and non-U.S. government research support, but the text does not say the funder designed or wrote the study.

The easy way to misread this

Do not treat the 441 adolescents and young adults as clinically diagnosed with intellectual disability. The method used proxy scores and reports to identify a research subsample, and the authors note the picture vocabulary test may not be equivalent across cultures or educational opportunities.

Read it on PubMed →