How do Parents Manage Irritability, Challenging Behaviour, Non-Compliance and Anxiety in Children with Autism Spectrum Disorders? A Meta-Synthesis.
Elizabeth O'Nions, Francesca Happé, Kris Evers and 2 others
PMID 29222612WHAT IT FOUND
Parents of children with autism often manage challenging behaviour by changing the environment and routine rather than the child.
Strategies included avoiding triggers, giving in to demands to prevent meltdowns, and constant supervision. This reflects high family burden, not proven efficacy.
Key findings
01Nine higher-order concepts of parenting strategies were identified: accommodating the child, modifying the environment, providing structure, supervision, managing non-compliance, responding to problem behaviour, managing distress, maintaining safety, and analysing/planning.
02A key finding was the extent to which parents adapt situations and demands to suit the child to avoid direct challenge, rather than trying to change the child's behaviour.
03Parents reported significant burden, including needing to supervise their child at all times and making concessions to preserve the family unit.
STILL TO COME
How it was doneWhat they foundWhat it means for OTsWhat it means for SLPs
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What it does not show
The study participants were predominantly well-educated Caucasian families from developed western societies, limiting cultural generalisability. Only one author screened papers and extracted data, with no reliability data reported, raising the possibility that relevant studies were missed. The synthesis included studies where parents may have been influenced by previous parent training, making it difficult to distinguish purely naturalistic strategies from trained ones. Exemplars were drawn predominantly from qualitative studies, which may disproportionately represent families with more severe behavioural challenges. It is unclear whether these strategies are specific to ASD or also apply to other neurodevelopmental profiles, such as severe intellectual disability.
Declared interests
The study was funded by the Support Fund Marguerite-Marie Delacroix and Fonds Wetenschappelijk Onderzoek (BE). No other conflicts of interest were declared.
The easy way to misread this
Do not interpret these findings as evidence that accommodation strategies are effective or recommended treatments. This paper describes what parents currently do, often under high stress, not what works best. The inclusion of physical punishment and restraint in the findings does not endorse these methods; they are reported as existing practices.