Growing-up autistic: Sharing autistic children's experiences and insights.
Sinéad L Mullally, Alice E Wood, Cherice C Edwards and 6 others
PMID 41889185WHAT IT FOUND
Most of these 136 autistic children felt it was okay to be autistic at home (91%) but not around teachers (26.8%) or friends (40.2%).
Only 4.5% felt they definitely had the words to describe being autistic, and 45.1% said they masked.
Key findings
01Children felt far safer being autistic at home than at school or with peers. 91% agreed it is okay to be autistic around people at home, compared with 40.2% around friends and peers and 26.8% around teachers, and this difference between contexts was statistically significant.
02Most children knew little about their own autism and few had the language for it. Over a third said they knew 'nothing' or 'a little' about being autistic, and only 4.5% felt they definitely had the words to talk about being autistic.
03Talking about being autistic was distressing and often avoided. 43% of children chose 'anxious' to describe how they feel when talking about it and only 2.2% chose 'excited'; 23.1% never feel safe or able to talk about their autistic experiences; only 13.3% felt brave or very brave telling others what they need; and 45.1% reported masking their autism.
STILL TO COME
How it was doneWhat they foundWhat it means for OTsWhat it means for SLPs
Read the rest of this summary
You get three full summaries a month, free, and we do not ask for a card. Search, the TL;DRs and your library stay unlimited either way.
What it does not show
Every family volunteered after seeing a recruitment post, and all the parents were actively seeking to understand autism better, so these children are not a cross-section of autistic children. 94.1% of the children were white and the families were less deprived than the UK average, so the findings say little about autistic children from other backgrounds. Only children who could complete a long questionnaire, either online or on a video call, took part, so children with higher support needs are likely underrepresented. These are answers given before any course, with no comparison group, so nothing here shows whether any support or treatment changes anything. The long questionnaires caused boredom and shorter answers. The researchers describe themselves as holding a neurodiversity-affirming view, and some are autistic or parents of autistic children, which they say shaped how the themes were built.
Declared interests
The authors received no funding for the research, authorship or publication, and declared no conflicts of interest. Worth knowing: the creators of the NeuroBears course that the wider study is evaluating are authors on this article, and the research collaboration grew out of a partnership they initiated with the lead author.
The easy way to misread this
Do not read this as evidence that any course, programme or therapy helps autistic children. These are baseline answers collected before the NeuroBears course began, no treatment was tested here, and the families volunteered themselves.
Summarised by AI from the full paper, without a clinician reviewing it. Check it against the source before it changes what you do. Read it on PubMed →