SLPQualitativeInternational journal of language & communication disorders2026

Exploring the Laryngectomy Pathway Experience-a Mixed-Method, Patient Journey Mapping Study of Two US Health Centres.

Laurie Wennerholm, Clare L Burns, Elizabeth C Ward and 4 others

PMID 42684340

WHAT IT FOUND

Twelve laryngectomy patients in one US health system saw a median of 13 different professions in their first year.

Care was rated mostly positive, but patients flagged gaps in pre-surgery preparation, phone communication, and paying for voice supplies. Issues SLPs can address directly.

Key findings

01In the first 12 months after surgery, patients had a median of 3 inpatient admissions, 7 medical visits, and 12 allied health appointments, with care provided by a median of 13 different professions (range 6–22 individual clinicians).

02Patients rated their care experiences as largely positive (median 77% positive, 0% negative, 19% neutral), but qualitative analysis identified six challenge themes, including inadequate pre-surgery preparation, difficulty communicating by phone, and financial burden of laryngectomy consumables.

03Patients from the suburban site (Site 1) travelled to 4–6 locations for care, while those at the tertiary site (Site 2) used 2–3 locations; the median round-trip distance per appointment was 24 miles (range 4–52 miles).

STILL TO COME

How it was doneWhat they foundWhat it means for SLPs

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What it does not show

Very small sample: 12 patients from one US health system, 9 interviewed. The authors acknowledge this and note that laryngectomy is low-incidence (~4,500/year in the US), making larger single-site studies impractical. Experiential ratings were collected by the treating SLP who had an ongoing clinical relationship with each participant, introducing a plausible under-reporting of negative experiences. Only patients with surgical voice restoration (voice prosthesis) were included; those using electrolarynx or other alaryngeal communication methods were excluded, so the findings may not generalise to them. Three participants died between consent and the interview phase, and more were lost from Site 2, reducing the final analytic sample to 9 for the qualitative component. The study is restricted to one privatised US health system; results may not apply to public health services or other countries with different funding and referral models. Comorbidity-related care (e.g., Participant 9's Crohn's disease) was not systematically captured, so the true healthcare burden for patients with multiple conditions is likely understated. Patient recall of appointments may have led to under-reporting of visits, particularly for services at external facilities.

Declared interests

The authors declare no conflicts of interest and no funding sources.

The easy way to misread this

Do not read the median 77% positive rating as evidence that this care pathway is working well. The ratings were collected by the treating SLP who had an ongoing clinical relationship with each patient, which the authors themselves flag as a source of potential under-reporting of negative experiences. This is a descriptive study of 12 people in one health system; it maps what the pathway looks like and where patients struggle, but it does not compare pathways, test an intervention, or establish that the current model produces good outcomes.

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