OTQualitativeJournal of autism and developmental disorders2026

Exploring Family Experiences With Section 504 Plans for Their Autistic Children.

RaeAnne Lindsay, Bhabika Joshi, Nehal Abaza and 8 others

PMID 40317350

WHAT IT FOUND

Most caregivers of autistic children described Section 504 school plans as negative, citing delayed evaluations, dismissive staff, and missed accommodations.

Positive experiences came from responsive school staff, family advocacy, and connections to other families or therapists.

Key findings

01Eligibility experiences varied: some families used private medical evaluations, some schools evaluated, and some schools refused to evaluate.

02Most caregivers said their Section 504 experiences were negative; positive experiences came from supportive networks.

03Supportive school staff, caregiver knowledge of the process, and networks of family and friends helped families obtain supports.

STILL TO COME

How it was doneWhat they foundWhat it means for OTs

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What it does not show

The study included 23 participants, and most were white and highly educated, so findings may not transfer broadly. The data were cross-sectional, so the study cannot show how experiences change over time. Only family interviews and surveys were used; the Section 504 plan itself and the children's own perspectives were not evaluated. This is qualitative work, so it reports experiences and themes, not effects of Section 504 plans.

Declared interests

No funding or conflict-of-interest declaration is included in the supplied text.

The easy way to misread this

Do not read these caregiver reports as proof that Section 504 plans are ineffective or harmful. The study interviewed 23 mostly white caregivers and did not measure child outcomes or compare groups.

Read it on PubMed →