Experiences of receiving a diagnosis of multiple sclerosis: a meta-synthesis of qualitative studies.
Gogem Topcu, Jacqueline R Mhizha-Murira, Holly Griffiths and 6 others
PMID 35254195WHAT IT FOUND
People with MS described diagnosis as a period of shock, fear, and anger, often worsened by impersonal communication and unbelieved symptoms.
They needed clear, timely information and ongoing emotional support from clinicians, but many felt these needs were unmet.
Key findings
01The most common emotional reactions were fear, anxiety and worry, identified by 29 papers.
02Dissatisfaction with health professionals was common, driven by not believing symptoms, not answering questions, and impersonal diagnosis disclosure.
03Patients needed emotional support to manage negative reactions and develop new identities, but these needs were often ignored at diagnosis.
STILL TO COME
How it was doneWhat they foundWhat it means for PTsWhat it means for OTsWhat it means for SLPs
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